Defining the characteristics of dwarfism, Erin told us that the average stature of someone with dwarfism is 4ft, or 120cm – “so you can just about get on some rides at Alton Towers”. She explained that she has achondroplasia, the most common form of dwarfism, which results in short arms and legs but an average torso.
Yet most buildings are architecturally designed for an average 6ft man. “This means public spaces can be really disabling,” Erin explained. “They create physical barriers for anyone who doesn’t fit the conception of the normal body.”
Showing an image of a supposedly accessible counter in a post office, where the counter had been lowered, Erin explained that as a person with dwarfism, she wouldn’t be able to reach the chip and pin machine, nor the big tray for depositing parcels. “You also can’t interact or communicate properly because the microphone is too high,” she noted.
Another misconception is around seating, with a common assumption being that people with dwarfism have it easy: “You get more leg room on a plane, for instance.” Yet the reality is somewhat different. “Your feet are poking into the back of the seat in front which is really uncomfortable,” Erin explained. “Once in a classroom at school, I had to climb onto an awful plastic chair, which cut off the circulation in my legs – they hung over the edge but never reached the floor. This caused me to shuffle constantly to stop the pins and needles.”
Erin told us that people with dwarfism are often treated as per the medical model of disability, with the medical community attempting to ‘fix’ the impairment. “In the past, doctors would break your legs as a child and stretch them for two years so you could be normal like everyone else,” she explained.
Even today, people with dwarfism are often treated with a growth hormone. This highlights medical solutions rather than ‘social model’ solutions, which involve making reasonable adjustments to facilities so they cater for everyone, regardless of their height. A big part of this involves changing people’s perceptions about what it means to be disabled, and recognising that disability takes many forms. “You can’t go to a rock gig, for example, because you have to stand behind another person and have their backside in your face.”
Erin’s research therefore focuses on strengthening the principals of universal design, to ensure facilities are accessible for all. “These will work if we move away from the dominant stereotypes associated with disability,” she explained.
“Instead of striving just to make things accessible for wheelchair users, and limiting our efforts to focus on less than 10 per cent of disabled people, we must aim for a much wider approach to become accessible for everyone.”