Sightsavers stories

“Action!”: Stories from Ghana

Sightsavers’ Jo Glyde goes behind the scenes during the making of our film about lymphatic filariasis with BBC StoryWorks.

A cameraman walks backwards to capture a woman walking down a road. She is carrying a container on her head.

There’s a large cool box in the back of the Sightsavers truck, packed with cold drinks. Every time I open the door to grab one, I jump, because I’ve forgotten that there’s a guinea fowl sitting next to it.

It’s a gift from Akazire, a woman living with a painfully swollen leg caused by the neglected tropical disease lymphatic filariasis. The bird greets me with a hard stare.

I’m in the town of Bongo in northern Ghana, close to the Burkina Faso border, with Gilbert Asante, Sightsavers Ghana’s programme manager for neglected tropical diseases, and our drivers Maxwell and Freeman.

We’re here to support Josh (producer) and Gareth (cameraman), who have three-and-a-bit days to make a short paid-for film about Sightsavers’ lymphatic filariasis (LF) work with BBC StoryWorks.

Our film centres around Martin, a local health worker, who has 63 patients living with the physical impact of the LF – swollen arms, legs, breasts or testes. Gilbert will also feature to talk about Sightsavers’ work to eliminate the disease in Ghana.

Akazire is beautiful and her shy smile lights up the already glaringly bright morning. Her left leg is enormous and has a large ‘dent’ in it, likely the result of a previous bad infection – common in LF patients.

With limited mobility and living with a lot of pain, Akazire supports herself by weaving hats and baskets. The crew are in love with her, and I have to stop Josh from immediately buying one of her hats, which would be a conflict of interest.

Gilbert tells us that it would be deeply offensive to refuse Akazire’s heartfelt gift and that we should be grateful that it isn’t a goat! At the end of the day, our unlucky guinea fowl will be handed into the ‘care’ of the hotel chef.

Under a tree outside the local health centre, we meet 12 LF patients being prepped for a visit the next day by the work’s funders, the UK Foreign, Commonwealth and Development Office. I listen in as Gilbert talks to them and translates.

As well as his work for Sightsavers, Gilbert is a pastor in Accra with a large congregation, and is a natural at whipping up a crowd. Gilbert is interviewed inside the health centre and then we film him running an LF training session for the local health team.

Our second patient for the film, Mabila, also makes hats for the local collective. She’s had lymphoedema since she was a girl. The LF parasite damages the body’s lymph system. This means that lymphatic fluid isn’t carried away and also affects patients’ immune response. Just a tiny scratch or cut on an affected arm or leg causes an attack with sudden swelling, throbbing pain and fever.

But because Mabila has been following Martin’s training – wearing shoes and keeping her leg scrupulously clean and elevated – she hasn’t had an attack for some time. This means that she can even dance, as she demonstrates with Josh.

Mabila’s mobility means that we can meet her in Bolgatanga to film her shopping for materials to make more hats. This involves another pre-dawn start but it’s worth it to witness the market waking up with vendors laying out their pots, pans and a wide selection of different reeds used to make hats, baskets and even coffins.

On our return to Bongo, Mabila takes us to her local water pump and we take her photo under one of the impressive baobab trees that patrol the landscape.

Mabila stands under a tree with a sheaf of reeds in one arm. She is carrying a large plastic container on her head.
Weaver Mabila returning home from the market with her supplies. © Sightsavers/BBC StoryWorks

We spend the rest of the day filming Martin – following him on his motorbike with a drone as we drive behind. He is a slow, thoughtful speaker and gives us a great interview at the local reservoir at sunset. He clearly cares a lot about his patients and he gives us some amazing soundbites, which can be used in the final film.

We just have time to film our last patient, Akambole, selling her vegetables at the side of the road. Her husband had hydrocele but has now recovered following surgery. Martin diagnosed her condition early and because she is managing it well, her leg is barely swollen – a testament to Sightsavers’ work.

As the sun sets, we’re surrounded by children. Everyone’s trying to get on camera. The only person with no interest in our circus is Akambole’s one-year-old daughter, who just wants to sit in her cardboard box.

Back at the hotel, in between a hundred other jobs, Gilbert is trying to track down our bird. Has anyone had it for dinner? Is ‘fowl’ play afoot?

Akambole sits outside with a young girl on her lap.
Akambole, who sells fresh produce, with her young daughter. © Sightsavers/BBC StoryWorks

On our final morning, we sacrifice a visit to the women’s hat-making collective to pick up some extra shots. Gareth and Josh have become obsessed with trying to film one of the mosquitoes that spread LF outside Martin’s house, which has involved patrolling their bathrooms with a large jar borrowed from the hotel.

I feel a little sorry for the dead insects as Gilbert checks to make sure they’re the right species and Josh carefully positions them onto a leaf with tweezers. After they lose their initial stock in the morning breeze, Josh returns from Martin’s bathroom, proudly displaying more mosquito trophies, and we finally wrap up filming.

It’s a hot and bumpy three-hour drive to catch our return flight to Accra. At the airport Gilbert gleefully flourishes a foil box packed with guinea fowl meat. Much to his disappointment, Josh and Gareth are not enthusiastic. We wrap it in a plastic bag and Gilbert tucks the prize into his suitcase, he’s earned it.

Watch the BBC StoryWorks film ‘Martin’s story’ below. 

We treat and prevent neglected tropical diseases

How we fight disease

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